My name is Paule Désir. In April of 2021, at the age of 53, I was diagnosed with multiple myeloma. Fifty three years of a life with its share of ups and downs!
A few years ago, I was diagnosed with cutaneous lupus as well as sickle cell trait disorder which leads to extremely low hemoglobin levels. At the time, I noticed my body needed rest after exerting a lot of energy or after a long trip. However, since 2019, the fatigue seemed more constant. I suffered from pain all through my body: my neck, back, hips, stomach, and head; I was also starting to worry about my concentration. In short, it was not going well.
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